| vsop.nl | VSOP | The VSOP is a patient association that supports individuals with rare and genetic conditions. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | award 642 conference 763 | |
| bloedziekten.nl | Stichting Zeldzame Bloedziekten | The website of Stichting Zeldzame Bloedziekten provides information, resources, and support for patients and families affected by rare blood diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | reference 332 patient 4082 association 8562 event 45199 | |
| astrazeneca.nl | AstraZeneca BV | The AstraZeneca Netherlands website provides information about AstraZeneca's operations in the Netherlands, including locations, therapeutic areas, and employment opportunities. | Medical Care & Services → Pharmaceuticals & Pharmacy 453 | cardiovascular disease 13 netherlands 1376 healthcare 2316 innovation 4659 research 8967 | North-Brabant → Oss 2962 |
| rnatherapy.nl | DCRT Dutch Center for RNA Therapeutics | The DCRT Dutch Center for RNA Therapeutics is a nonprofit consortium dedicated to developing tailored RNA therapies for patients with rare genetic disorders, specifically focusing on splice modulation using antisense oligonucleotides. | Research & Academia → Research 1505 Disease & Treatment → Medicine 1017 | consortium 84 | Rotterdam → Center 382 |
| recordati.nl | RECORDATI | The Recordati website provides information about an international pharmaceutical group focused on research, development, and marketing of pharmaceuticals, particularly in the areas of rare diseases and primary care. | Medical Care & Services → Pharmaceuticals & Pharmacy 453 Health → Pharmaceuticals & Medical Products 2409 | pharmaceutical 88 medicine 435 therapy 7448 research 8967 | |
| expertisezoeker.nl | Erfocentrum | The website expertise-zoeker.nl is a public display of data about recognized centers of expertise for rare diseases in the Netherlands, enabling users to find a suitable center based on their specific condition. | Disease & Treatment → Rare Diseases 229 | search 1027 | |
| zeldzameaandoening.nl | VSOP | This website, zeldzameaandoening.nl, provides information about rare diseases and connects European policy with Dutch healthcare. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | theme 4015 network 11123 care 12338 | Netherlands → Utrecht 48901 |
| kwaliteitvoorzeldzaam.nl | VSOP | The website specifically focuses on improving care for patients with rare diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | care network 13 | |
| lenticure.nl | LentiCure | The website of LentiCure presents information about gene therapy, with a focus on rare genetic diseases and socially responsible pricing. | Medical Care & Services → Medical 188 | gene therapy 10 | |
| zeldzamenvoorelkaar.nl | Zeldzamen voor Elkaar | The Zeldzamen voor Elkaar website aims to support families with children suffering from rare diseases, with the goal of improving the quality of life for these families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | family 6462 story 8285 volunteer 8367 | |
| comiteweesgeneesmiddelen.nl | Committee for Orphan Medicines | The website of the Committee for Orphan Medicines describes the work of a group of companies that develops innovative medicines for rare diseases and the goal of providing patients with rapid access to these treatments. | Disease & Treatment → Rare Diseases 229 Associations & Groups → Industry Associations 548 | patient 4082 | |